Pulmonary embolism and pain management

 I have an awful lot going on with my health at the moment what with the lung ๐Ÿซ problems and my ongoing other health issues. My Multiple Sclerosis has decided that it wants to make life more difficult and my reflux problems are acute at the moment. I can only seem to be able to sleep sitting in my wheelchair ๐Ÿฆผ . Not as uncomfortable as that might actually sound. I am awaiting an appointment for an endoscopy but as with anything hospital related getting this done has become a comedy ๐ŸŽญ of errors. The original request was made on the 30th of June but that evidently got lost but re emerged Friday last. The fact it was an urgent request is not on the radar of said appointment givers and despite two other urgent requests since I am still not any closer to getting my endoscopy ๐Ÿ˜ฎ 

I’m not moaning but I am frustrated. Heather has the full weight of all these phone calls etc full upon her shoulders and it is gradually getting her down ☹️๐Ÿ˜”๐Ÿ˜ž๐Ÿ˜’๐Ÿ˜ฉ


Update I have got an appointment next Friday! Yippee. Wish me well ๐Ÿ‘❤️

Pulmonary embolism makes me feel awful

 The last couple of days have been awful. I am as weak as a lamb and sleeping all the time in fact I may sleep at the end of this word! Sleep ๐Ÿ’ค ๐Ÿ›Œ ๐Ÿ˜ด 

Blood clot on the lung an Ulcer plus Pneumonia

I told you I had been into the  UCHL for some fettling of my Baclofen Pump. Whilst there it was discovered that I had Pneumonia a Blood Clot on the Lung (Pulmonary embolism) and an Ulcer so my Baclofen Pump increase was put on hold until all the other problems a sorted    

I have been very unwell and even now after a couple of days at home I an feeling a long long way from better. Evidently the PE (Pulmonary embolism) will take three to six months to disperse and the blood thinning tablets are to be taken with care. The Pneumonia has had some super strong antibiotics and my breathing is improved but not perfect because of my blood clot๐Ÿคจ. I need to have a camera down my throat to check out the Ulcer and some other Gastric stuff, all in all I was jolly lucky ๐Ÿ€ to have been in hospital when all of these things combined to do me harm. I finish five days of twice daily injections from the district nurses tomorrow and start taking the blood thinning tablets on Monday. They are the modern replacement for Warfarin   

Our youngest daughter summed up the last few days by saying “if you were a cat you used up one of your lives”


No photography today. Must do better tomorrow

 My camera ๐Ÿ“ท lay unloved in the cupboard today ☹️ I try and use it almost every day but today was my first full day home from hospital and I was weary. My visit had been very eventful for all the wrong reasons. I discovered I had a Pulmonary embolism a cyst and I even developed Pneumonia in there. Thank goodness I was in there! Photography to me is a very special therapy. It allows me to escape away from the trials and tribulations of everyday life, it’s pure escapism. I love slowing down and waiting whether it’s trying to get a photo of a bird out of the window, I have a wheelchair and there’s steps down to our garden so window photography it’s then for me. Heather gets me photos of the flowers she grows form. I play around with them, I just crop or convert to black and white. I don’t like photoshop as in my mind it’s messing up the photo.

Litter litter everywhere can’t anyone use a bin

 I was in my wheelchair recently passing a paper shop and a man came out of the shop cigarette pack in hand, he peeled the cellophane off an...